Hi,
My name is Alex and for those of you not familiar with me, I will tell you a little bit about myself. I am almost 2 years old. When I was born the doctors found out that I have a very rare congenital heart defect known as Scimitar Syndrome. After 2 open heart surgeries and 2 cardiac catheritizations to make me better, I had a g-tube put in to help me get the nutrients I needed to grown and gain weight. It worked but now, I only eat very limited things by mouth. Certainly not enough to help me as a I grow. Mom and Dad have had us try many different speech therapists and different ways to get me to eat since I came home from the hospital the last time in May of 2006. Still, I have a mind of my own and have not really come around to the idea just yet. We have looked in to many programs here in the United States where they specialize in feeding, they are very long and very expensive so Mom and Dad found this program in Austria that we believe will help me. So on December 1, 2007 we will take my first plane ride there! We will spend my second birthday in Austria. "I hope that I see some snow"!
Friday, November 16, 2007
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5 comments:
Dearest Little Alex,
I will miss you very much when you are in Graz, but at least with this web page I can see how you are doing. My wish for you & Mommy & Daddy is that you come home for Christmas, minus a GT. You have come such a long way in your almost 2 years, I am so amazed by you and your strong will. The best to you and Mommy & Daddy. Bunches of Hugs & Kisses <3 XOXOXOXOXOXO
Love you lots, Your nurse Patty
My Precious Grandaughter,
I love you with all my heart. I will be praying for you,Mom and Dad. We will be thinking of you everyday, hoping everything will turn out ok. You fill my heart with love. Everytime I come to see you, you are more beautiful than the time before. You have been through alot, yet you are so happy and loving. Grandpa sends you a big kiss, and hug.
With All my Love
Grandpa
amma and papa said..
Little Angel,
We are going to miss you Mommy and Daddy very much. You have been through so much and we know that you will come home without your GTUBE. Papa said to tell you that your tree swing will be waiting for you, and we will give Otis, Maggie and Bailey a kiss for you. Hope that you all stay nice and warm. Please say Hello to Ernie and Elmo for us and we all will sing the Wheels on the Bus song , and the Spider Song when you get home..
We Love You
Amma and PaPa
My love Alex,
We are so glad you made it there safely and know you will do fantastic. Otis & Maggie played all day yesterday and most of today with Logan and the kids in the neighbor and we went for a walk with them twice. We will pray for you every night and can't wait till you come home and we can play together and have a great Christmas and birthday party. We know how strong willed you are and you will get through this. We will keep logging on and monitoring your progress. Luv you much and kiss mommy & daddy for us! :) XXOOOXXX
Your favorite aunt & uncle & cousin
Dear Baby Alex:
Uncle Chuck, Aunt Carol & Logan miss you very much. We'll be watching Otis & Maggie for you while your in Austria. It will be the best Christmas present ever to see you eat without a G-Tube. We love you very much. Love Always,
The Millars
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